Why should research matter to me?
Beyond Pink TEAM contributes to breast cancer research through our organizational membership in the National Breast Cancer Coalition (NBCC). Several Beyond Pink TEAM members have taken the NBCC's Project LEAD® Institute and become Consumer Reviewers for the Department of Defense Breast Cancer Research Program, the California Breast Cancer Research Program, and the Patient Centered Outcomes Research Institute (PCORI).
How does National Breast Cancer Coalition (NBCC) help to secure and allocate research funds?
For the National Breast Cancer Coalition, ensuring quality research means working consistently, year after year, to ensure adequate federal appropriations for high-quality, peer-reviewed research. In addition, NBCC is committed to making sure those hard-won research funds are well-spent and that relevant research in the private sector addresses the needs of breast cancer patients. NBCC accomplishes this by demanding advocate representation on all relevant review committees and panels and through collaborations with the scientific community.
NBCC works to increase the effectiveness of breast cancer research in several ways:
What is the focus of the research work with which NBCC is involved?
While the majority of breast cancer research is focused on finding the next treatment drug, the National Breast Cancer Coalition is focused on two issues:
What role do advocates play in research?
Breast cancer advocates who are trained, educated and represent a patient constituency must be meaningfully involved in all aspects of decision-making that affect breast cancer research. This is the only way to ensure that funds are effectively spent and adequately address the causes and prevention of breast cancer, develop optimal treatments and cures for breast cancer, and focus on the best possible means to end the disease. Learn more about Breast Cancer Advocate Involvement in the Research Process.
Learn more about NBCC and Research.
How do you evaluate information to find valid,
pertinent research for your type of cancer?
Choose Your Web Sites Cautiously
News Story Review Criteria
Breast Cancer is often in the news and breast cancer is also big business. Can you trust what you read/hear? Become an educated patient and learn how to distinguish between evidence and hype. Here are a few tools to help (from Healthnewsreview.org):
We have found the following to be trusted sites to help you distinguish between evidence and hype from the latest breast cancer news.
Living Beyond Breast Cancer: includes a helpline, newsletter, and information. Survivors Helpline: 888-753-5222
Young Survival Coalition connects with other young women diagnosed with breast cancer.
Cancer Care is a national nonprofit organization offering counseling, support, financial assistance, and education to individuals with cancer and their families.
Iowa Cancer Consortium offers cancer information and links to resources in Iowa.
American Cancer Society offers cancer information and services.
National Comprehensive Cancer Network® (NCCN) provides state-of-the-art treatment information in easy-to-understand language to people with cancer and their caregivers.
National LGBT Cancer Network works to improve the lives of LGBT cancer survivors and those at risk.
National Cancer Institute offers information about cancer, breast cancer, clinical trials, cancer statistics, research and funding, and the latest news. They will also answer your questions by calling 1-800-4CANCER.
National Cancer Institute for NCI dictionaries of cancer terms, genetics terms, and cancer drugs.