by Paula Pecenka

It was July 6, 2005 and the biopsy results were in. Everyone had assured me that I had nothing to worry about; turns out they were wrong. There I was sitting in the doctor’s office with my mother when I was told the news: I had breast cancer at age 25. I didn’t even know that this could happen to a young person like me. I didn’t know what to do. From the get-go I knew that this was going to be a rough road. But in the end I knew I was not going anywhere. I still had too much to accomplish in my life. My son was 2 years old. I wanted to see him grow up and live his life.

My husband and I had just started our life together. All these thoughts kept going through my mind for the first month. I had a lumpectomy one week after the diagnosis. The twenty strenuous weeks of chemo started one month after surgery. I always kept positive no matter how bad it got.

For example, I started to lose my hair so my sister gave me a Mohawk. I couldn’t go out so my friends would come over to sit with me through the tired days. My husband was always there for me and, of course, always took good care of our son. I had such a good support group, family, friends and work family. My mom and dad were always there for me. My sister came and lived with me for three months.

While she was there, she helped take care of my family and cleaned my house. I also had a great job. Allen Home Health Services is the best place to work. I have never had supervisors that cared so much about their employees. I couldn’t have gotten through this period of my life without my 50 workmothers.

After chemo was finished, I discovered another lump in the same breast in December of 2005. I felt that the only way I would feel safe would be to have a bilateral mastectomy. That was the best decision I could have made. I have since had a total breast reconstruction and am doing great. I appreciate life so much. I don’t regret any decisions that I have made.

In February of 2006 I went to the Young Survivor Breast Cancer Conference in Denver, CO. It was a three day conference with over 400 young survivors attending. There were many workshops for us to attend. I went to the “fertilization after chemotherapy workshop”, the “nutrition workshop”, and many others. I met people from all over the country. It was great! I was not able to attend in 2007 but would love to go in 2008.

The conference usually changes locations every year. Having cancer is a lot to cope with at 25 or any other age - losing your hair, feeling tired all the time, stomach upsets and low blood counts. If I could tell all the young people in the world one thing it would be “don’t give up”. You need to do everything in your power to keep on living. My faith was also a big part of my recuperation and recovery. God has always been there for me. He helps me be strong for my family. It has now been 2+ years since my diagnosis.

My son is now 4 and is in preschool. My husband and I just celebrated our 6 year anniversary. Everything is going great. I still think about cancer going into the future but I know that I am strong and will be able to handle anything. I would also like to encourage people to talk and be open about your experiences – good or bad. I believe that we need to get more young survivors involved in the Cedar Valley area. It would have been very helpful to me if I had had another survivor to talk with which is why I would like to be there for someone else in need of support.

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Amy Kimball, MPT, ATC 

By now, most breast cancer patients who undergo a mastectomy or lumpectomy know about arm lymphedema, a common condition involving upper extremity swelling that can occur following surgery, radiation or chemotherapy. Many breast cancer survivors and health care providers falsely believe that as long as their arm does not swell they have avoided the life long condition of lymphedema.

Unfortunately, patients who undergo breast cancer surgery, either lumpectomy or mastectomy, radiation or breast reconstruction are at risk for developing a similar condition known as truncal lymphedema. Lung cancer patients are also at risk for truncal lymphedema. This condition involves swelling in the chest or back following one of the above listed procedures. It can present with or without significant involvement of the adjacent upper extremity. Truncal lymphedema often remains undiagnosed or misdiagnosed due to difficulty in accurately and objectively measuring its presence or severity.

Symptoms of truncal lymphedema are similar to that of upper extremity lymphedema. The primary symptom that patients report is pain in the shoulder, chest wall or back. It is usually more severe than the pain patients report with arm lymphedema. Anterior chest wall swelling is commonly present, especially in the affected breast or chest wall where the breast once was. Some women have swelling collect under the incision from their surgery. Swelling of the back, shoulder blades or involved side of the trunk is also often common. As stated earlier, swelling may or may not occur in the involved arm. If the patient has undergone breast reconstruction, edema may settle around the newly constructed breast and may lead to complaints of fullness, poor shape, breast asymmetry or discomfort. These symptoms persist long after the healing stage of reconstruction and are often accompanied by tissue texture changes such as fibrosis and scar or breast tissue contracture.

Patients can affect the degree of development and progression of truncal lymphedema. Steps taken to avoid increased pressure or the tourniquet effect are the best line of defense. Underwire bras are not recommended for anyone who has breast cancer or is at risk for developing lymphedema. Avoiding a heavy prosthesis which puts added pressure on the chest wall and loads bra straps is recommended. Eliminating narrow bra straps and using wider, padded straps helps to disperse pressure over a greater area, easing the tourniquet effect. It is also a good idea to ensure proper bra fit, especially avoiding constriction around the chest. Choosing a bra with a wide, flexible band decreases circumferential chest compression. Experienced certified fitters and breast prosthesis vendors can direct patients to find the right bra for their body type and needs. Patients should also be advised to avoid constriction around the waistline (i.e. belts, tight waistbands) to minimize circumferential compression.

Medical treatment for this condition involves a multidisciplinary approach. Patients should contact their physicians if they notice acute or persistent swelling. Medical workup may be performed to rule out infection or other problems. Physical Therapy is commonly ordered to start complete decongestive therapy (CDT), scar tissue or fibrosis mobilization, therapeutic exercise and compression therapy. CDT includes intensive, hands-on manual lymphatic drainage techniques to be performed by a therapist with specialized training in lymphedema management. A therapist with this training knows specific techniques and patterns for redirecting and removing excess lymphatic fluid. Studies have shown that CDT, in conjunction with scar tissue or fibrosis mobilization can significantly reduce the presence of edema, improve range of motion, and reduce pain. Lymphedema therapists will teach patients how to perform self massage, scar tissue mobilization and exercise at home so that the patient can manage this condition for a lifetime. Many patients do require short or long term use of compression therapy which may include use of specialized bandages, compression pads or custom bras. The specialized bras work to provide compression where it is needed most while avoiding the tourniquet effect on the chest wall, back or shoulders. 

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